Ask Jackie: Unexpected Blessings

Dear Dillon and Michael

Posted on Sun, Jul 22, 2012

Dear Dillon and Michael,

Today is National Fragile X Awareness Day. Here are some facts that I share with others that want to know more about Fragile X Syndrome.

  • Fragile X is caused by one gene not working properly.
  • This gene, FMR1, shuts down and fails to produce a vital protein.
  • 1 in 4000 boys and 1 in 6000 girls are affected with Fragile X.
  • It’s the leading cause of mental impairment ranging from learning problems to mental retardation.
  • It causes behavioral challenges such as anxiety and hyperactivity.
  • It’s the most common known genetic cause of Autism.
  • It also causes seizures in some children and adults.

And this is what my sister and I want you to know……

  • If we could wave a magic wand and cure this disorder…..we would.
  • We need you two to sleep through the night more than twice a year….Come on boys!
  • When the two of you get together you fill the room with joy, tears, laughter and sometimes…complete frustration.
  • We feel your anxiety in every situation and we feel completely helpless when we can’t comfort you or make it all better.
  • You two have touched so many lives; more lives than we will ever know.
  • You two have a huge support system from your family and friends that love you and will always be there for you.
  • And most importantly…..God knew exactly what he was doing when he formed you and he has wonderful plans already laid out for you into the future.

I love you both,
Mom and Auntie Jackie

Tags: special needs, Autism, Dillon